Monday, July 16, 2007

The Chiari Treament Center

Well, my original neurosurgeon's office called today and left me a message that they were still waiting on approval from my insurance for the MRI of my brain. I came home and was reading the posts on the Chiari support group on Yahoo (click here) and came across The Chiari Treatment Center (click here).

This makes me happy...not only have I seen Dr. Oro's name all over the Yahoo Support Group site, but their website was very informative and user friendly. Dr. Oro is one of the BEST neurosurgeons in the US specializing in Chiari and they are located in Colorado. Now that would initially seem like it's far far away, but I have a friend that lives in Highlands Ranch, CO which is only about a half hour away from Aurora. How happy am I? Even better? They have an EMAIL ADDRESS to schedule an appointment and ask questions AND they accept my insurance. THIS IS SERIOUSLY THE BEST THING I'VE FOUND!!!!

This is just my story of my experience with Chiari. Until I was diagnosed, I'd never heard of it, and I just want more people to be aware of it. I'm not a doctor, so don't quote me on any of this stuff - k? If you are looking for information about Chiari Malformation, a lot of the more informative posts are the older ones.