I saw my local doctor today and she released me to go back to work...I'm just not supposed to drive until I see Dr. Oro on December 3rd. Basically, I'm allowed to work from home.
She told me to stop being chicken and start turning my head so my muscles don't spasm. What she failed to consider is that muscle spasms seem normal to me. So I'm going to start moving my neck around more and improve the flexibility.
As of this upcoming Tuesday, I can start lifting 15 pounds - that means I can start loving the puddy properly - YAY!
This is just my story of my experience with Chiari. Until I was diagnosed, I'd never heard of it, and I just want more people to be aware of it. I'm not a doctor, so don't quote me on any of this stuff - k? If you are looking for information about Chiari Malformation, a lot of the more informative posts are the older ones.
Thursday, October 25, 2007
Monday, October 22, 2007
Sunday, October 21, 2007
Extreme Makeover: Home Edition - Carter Family
I feel like I should mention that I did see tonight's episode about the Carter family. (Thanks for everyone that called to tell me!)
My thoughts:
I'm thrilled that Chiari got national exposure tonight!!! This is by far the most important thing!!!!
I'm a little disappointed in how much ABC dramatized the severity and symptoms.
I can't blame the Carter family for how they were edited.
I'm disappointed that such emphasis was put on the possibility that Chiari is hereditary. Moms feel bad enough for their kids that have Chiari - this just made them feel that it was their fault that their kids have it. The statistics on passing Chiari along to your kids is 12% if you have it. I look at it this way: I know I have it, I know it's possible that I could pass it on to my kids one day, I'll look out for symptoms and have them tested early.
Most people with Chiari don't die. Yet there was significant emphasis placed on the possibility of death from Chiari by ABC's editing. (I visited the Carter's website and don't believe that it's anything they intentionally emphasized.)
The Chiari Support Group on Yahoo (great site!) is now flooded with people panicked about the possibility of dying from Chiari and of passing it onto their children.
At least the nation has heard about Chiari!
My thoughts:
I'm thrilled that Chiari got national exposure tonight!!! This is by far the most important thing!!!!
I'm a little disappointed in how much ABC dramatized the severity and symptoms.
I can't blame the Carter family for how they were edited.
I'm disappointed that such emphasis was put on the possibility that Chiari is hereditary. Moms feel bad enough for their kids that have Chiari - this just made them feel that it was their fault that their kids have it. The statistics on passing Chiari along to your kids is 12% if you have it. I look at it this way: I know I have it, I know it's possible that I could pass it on to my kids one day, I'll look out for symptoms and have them tested early.
Most people with Chiari don't die. Yet there was significant emphasis placed on the possibility of death from Chiari by ABC's editing. (I visited the Carter's website and don't believe that it's anything they intentionally emphasized.)
The Chiari Support Group on Yahoo (great site!) is now flooded with people panicked about the possibility of dying from Chiari and of passing it onto their children.
At least the nation has heard about Chiari!
Dream a little dream...
In addition to my improved sense of smell, I'm now dreaming every night. Crazy dreams that are completely random. I've got to start writing them down!
Thursday, October 18, 2007
Bored!
Monday, October 15, 2007
Sister Watch 2007
It's 11:27 AM on Monday and my sister has not yet arrived...she did call about an hour and a half ago to say that she was getting ready to come over. No sign of her yet and she's not answering her cell phone. I'm HUNGRY!!!
3:15 PM Update - My sister just left...total time spent with me today? 3 hours and 6 minutes. :) She promises to be back tomorrow.
3:15 PM Update - My sister just left...total time spent with me today? 3 hours and 6 minutes. :) She promises to be back tomorrow.
Sunday, October 14, 2007
No you may not stick a magnet to the back of my head
Sorry for those of you that had hoped to stick a magnet to the back of my head...Titanium is NOT magnetic, although it does have some cool properties that you can read about here. My sister refuses to believe it until she tries it though!
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This is just my story of my experience with Chiari. Until I was diagnosed, I'd never heard of it, and I just want more people to be aware of it. I'm not a doctor, so don't quote me on any of this stuff - k? If you are looking for information about Chiari Malformation, a lot of the more informative posts are the older ones.