Wednesday, April 30, 2008

Save the Date!

September 20th, 2008
Conquer Chiari Walk Across America

The goal is to have one walk in each of the 50 states. For more information, please visit: Conquer Chiari Walk Across America.

I've volunteered to co-organize an event in Southern California. I encourage you to participate in your state as well!

Friday, April 4, 2008

6 Month "Anniversary"

My "mohawk" is getting quite long and is at the awkward stage where it's too short to fit in my ponytail and too long to just ignore. I have to clip it up and it almost always sticks out somewhere.

I've decided to grow my long hair for 3 more months and then chop off 9 inches on the 9 month anniversary of my surgery and donate the two ponytails to Pantene Beautiful Lengths. They only require 8 inches and give free wigs to women who lost their hair due to cancer treatment.

This is just my story of my experience with Chiari. Until I was diagnosed, I'd never heard of it, and I just want more people to be aware of it. I'm not a doctor, so don't quote me on any of this stuff - k? If you are looking for information about Chiari Malformation, a lot of the more informative posts are the older ones.