Wednesday, April 30, 2008
Conquer Chiari Walk Across America
The goal is to have one walk in each of the 50 states. For more information, please visit: Conquer Chiari Walk Across America.
I've volunteered to co-organize an event in Southern California. I encourage you to participate in your state as well!
Friday, April 4, 2008
I've decided to grow my long hair for 3 more months and then chop off 9 inches on the 9 month anniversary of my surgery and donate the two ponytails to Pantene Beautiful Lengths. They only require 8 inches and give free wigs to women who lost their hair due to cancer treatment.
This is just my story of my experience with Chiari. Until I was diagnosed, I'd never heard of it, and I just want more people to be aware of it. I'm not a doctor, so don't quote me on any of this stuff - k? If you are looking for information about Chiari Malformation, a lot of the more informative posts are the older ones.