Sunday, March 2, 2008

5 Months Post-Op

Still "boring", no symptoms, I just feel absolutely wonderful! The busy season at work is drawing to a close and for the first time, I didn't leave work each night completely exhausted with a piercing headache. Sure I was tired, but in a completely different way - I wasn't exhausted and drained. Just in need of a little rest and relaxation. Words can't describe the difference. It's amazing!

Tomorrow is my birthday and I'm getting my first professional massage post-op. I can't wait! It's nice to be getting a massage for pleasure, rather than for survival.

I've received a few emails over the last few months from others with Chiari that want advice or just to hear more about my experience. If you're reading this and want more info, or just want to "talk" to someone who has been there, please don't hesitate to send me an email. It is so rewarding to be there for someone and is amazing to instantly feel so connected to someone you've never met that lives 3,000 miles away!

To have "survived" Chiari and be symptom free, I feel a need to give back. If this blog and a few emails help someone else, I feel that I'm making a difference, however small it may be.

23 comments:

Blog Dog said...

Congrats , I too have very few symptoms especially no headaches . Knock on wood double knock . take care

lace1070 said...

Jenn ~ Have a wonderful B-day and enjoy your massage!! So glad to hear that you too are a survivor ~ this Chiai monster can be confronted and stopped and I think it's great that you continue your success story with others :) Hugs to you ~ Lace

laura said...

Thanks for yur willingness to share Jenn.I hope you had a wondeful birthday

Bianka said...

How nice to be able to help others!

Debi said...

Thank you for sharing your experience here! I'm so glad that you're doing well. I am scheduled to have surgery by Dr. Oro on April 8th...and your blog has been so helpful and encouraging. This will be my 2nd decompression and will be more involved than the 1st - but your blog has helped me feel "better" about it! I would love to chat if you would like to email me.
Thanks & take care,
Debi

Debi said...

I'm not sure if my email address is showing in my profile..so here it is!
dap8558@yahoo.com
Thanks!
Debi

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Anonymous said...

my son is 20 old 2 months post decompression but his s/s remain (worsen) blurred vision, unsteady gait, poor bal (falls a lot) seizure like act, chroinc hickups, n/v, poor appetite, poor fld intake, major wt lost feb dx with chiari he was 212 today he is 176 when s/s started in Nov he was 242 he is 6feet tall...I am soooooo stress his dr say 3-5months to see if s/s will go away do not know what to do for him the wait 5moths suggested by dr g-tube due to wt lost how long did your s/s go away if you have any suggestion, tips please email address sjuanita39@aol.com

Anonymous said...

can anybody help with suggestion he is still under Dr care but they all saying the same wait and see

Anonymous said...

Man, I wish I could work with my Chiari symptoms, I could for a while go to school. But when the schedule got more intensive, I had to give up due to pain.
Do you know any Chiari 0s that have gotten success with surgery? I have gotten a dethethering- no luck. I also have a pain pump, also no luck!

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This is just my story of my experience with Chiari. Until I was diagnosed, I'd never heard of it, and I just want more people to be aware of it. I'm not a doctor, so don't quote me on any of this stuff - k? If you are looking for information about Chiari Malformation, a lot of the more informative posts are the older ones.