Wednesday, April 30, 2008

Save the Date!

September 20th, 2008
Conquer Chiari Walk Across America

The goal is to have one walk in each of the 50 states. For more information, please visit: Conquer Chiari Walk Across America.

I've volunteered to co-organize an event in Southern California. I encourage you to participate in your state as well!

4 comments:

Anonymous said...

Jenn count me in. I will walk and help in any way.
Barbie

Ashley @ pure and lovely said...

Hey-I came across your blog while searching for more information on Chiari Malformation type 1. My two year old son was just diagnosed with it this April. Thanks for blogging about it...it's good to see people living their daily lives with the condition. We don't have any idea as to the extent of it yet, or anything like that, but are still in the learning stages, and its comforting to see people carrying out their every day lives successfully. Just wanted to thank you.

nina.jean said...

Hi there,

I just wanted to know if you've finalized any details about where the walk you are co-sponsoring in CA will be held?

Anonymous said...

Jenn,
Thanks for the inspiration and all the upbeat info on your blog. It's not often I read of someone who is a "success story" after surgery so "kuddos" to you or should I say to Dr. Oro?

I've been hesitant to pursue a craniotomy, but you've given me a new found hope!!!

I'll be thinking of you while on the walk in Portland, ME so "walk a mile for me".....!!!

4xShuntfailure

This is just my story of my experience with Chiari. Until I was diagnosed, I'd never heard of it, and I just want more people to be aware of it. I'm not a doctor, so don't quote me on any of this stuff - k? If you are looking for information about Chiari Malformation, a lot of the more informative posts are the older ones.