Friday, October 2, 2009

Happy 2 Year Anniversary to Me!

Two years post decompression and I am 27 weeks pregnant with twin boys...could it be any better?! :)

I get asked a lot about my plans for the birth...and truth is, I don't really have a plan. There are just too many variables that will come into play and will require a "game time" decision. I trust my doctor, my husband, and myself. I've been through enough pain and medical procedures to know what I can handle, and my husband does too. (He also knows not to let anyone near me with Percocet - EVER!) I'm definitely looking forward to the experience! It'll be the first time I get to go to the hospital when it's not a major procedure to fix something that's wrong with me...I'm even more excited than I was for my decompression!

I feel that in many ways, my Chiari and my decompression surgery helped prepare me for the upcoming delivery. I'm loving being pregnant, and while the belly is starting to get uncomfortable, it's nothing compared to living with my Chiari symptoms for years.

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Congratulations on your 2 year Anniversary and the upcoming arrival of twin boys! As a mom of 3 boys, let me tell you being a "boy mom" you'll be busy, but it is the BEST thing ever. I'm actually contacting you because my middle son Carter age 12,was just diagnosed with Chiari Malformation. I saw you are located in Chino. We are local to you. Can you tell me of any local specialist or support groups? It would be greatly appreciated. This is all so new and very scary as a mom.
Thank you Autumn

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Hi! My name is Brook Moates, and I was diagnosed with Chiari 1 a couple of weeks ago. My appointment with the neurosurgeon is this afternoon. I found your blog through a google search. I haven't had a chance to read through your whole journey, but it is so interesting to see how similar our symptoms are. I hope you don't mind if I continue reading and follow your blog. And, congrats on the twins! My best friend has twin boys and they are such a blessing.

janasa123 said...

Congratulations on your 2 year anniversary! What a great time for you, plus your expecting twins as well. I came across your blog as I was searching Chiari info. My daughter is 27 and was diagnosed about 10 years ago, but opted out of surgery at the time. Over the past 6 months, her symptoms have become increasingly severe, include a migraine cycle, face drooping - thought she was having a stroke, problems swallowing, the list goes on. She spent 2 weeks in the hospital this summer just for symptom management. I'm anxious to show her your blog so that she can see that there is light on the other side. Addiditonally, she gave birth to a healthy baby 3 years ago, had an epidural as well. The biggest problem was because of her limited range of motion in her neck, it was difficult for her to curl her body forward as she was pushing. Thanks for sharing your story!

Jenn Ann said...

I just realized that I didn't comment back for Autumn...

I don't know of any local specialists...though there is a doctor at UCLA that was on the ASAP board. If it's at all possible, Dr Oro is my #1 pick, even if he is in Colorado.

There aren't any local support groups that I know of...besides me of course! :) Want to start one?

Patricia said...

Hi my 16year old daughter has just been diagnosed with at type 1 chiari malfomation with syringomyelia. She is now hopeing that there is a neurosurgeon that can help her(we are in New Zealand and she is the first person to be diagnosed in our city that the dr's know). She is very scared about it even thought she tells every one she is ok. She has jsut read your blog and now feels there is life after this. She is not going to school now due to the pain. but is hopeing to be back at school next year.

Thank you for giving her hope.

Devri said...

Hello! Congratulations on the 2 year anniversary! Why Iam contacting you is because I am doing a research paper on Chiari Malformations. I need some pictures and information on a personal experience with type I. I came across your blog and thought you were the perfect person, however I wanted to ask before I went ahead. Please contact me by e-mail and let me know if you are okay or not okay with this. Thanks so much!
Devri
ellidevr@isu.edu

Donna said...

Thank you for sharing your story of success. 8 years of discomfort, 2 cervical neck surgeries and now the CM has gotten so bad I am not going to make it. Your story tells me there is hope. I hope your delivery went well and the babies are healthy. Merry Christmas and have a Very Blessed New Year!

Lindsay said...

Hi! My name is Lindsay. My 12 year old daughter was diagnosed with Chiari Malformation almost three years ago. She fights with the weakness and the everyday pain but just in the last couple of months things have changed. She has gotten worst by three times. I don't know how to deal with kind of stuff. She has one of the best neosurgeon in Sacramento. On top of that she also has CP. I would like to get some light shined on this if you can help please do so. Thanks

Lori said...

I have Chiari too, only I had the endoscopic decompression. The difference in the scar is 5" and I was only in the hospital 24 hrs. Perhaps you could share this with your readers. Check out my blog at mychiaribooboo.blogspot.com and see what you think. Congrats on the babies by the way :)

Good luck,
Lori

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