Saturday, July 21, 2007

Update

Well it turns out the email address is for someone who hasn't worked there in months. Of course it wasn't returned, so I didn't know that until I called on Thursday.

I answered some questions over the phone and they asked me to mail them the CD with my MRI films. I'm making a copy of it this weekend and mailing it to them on Monday along with a list of my symptoms.

Once they receive it the doctor reviews everything and then they'll call me to schedule an appointment if they deem me worthy of their time. (I feel like I'm applying to college or something).

Keep your fingers crossed!

Oh and I'm still waiting the approval from my insurance for the brain MRI. The neurosurgeon didn't submit medical records indicating the need for the second MRI - having taken a medical billing class I understand why this is necessary - most people (including insurance billers) don't. They submit them (they have to mail them which is really lame), the insurance company has an RN, and maybe even a doctor, review them and then they grant their approval. Again, it's like I'm applying to college or something.

8 comments:

Anonymous said...

That is so true!! I was diagnosed with Chiari I this past summer and they said the you have to be displaced by atleast 5 mm. I'm at 4.6mm so they won't do surgery. Meanwhile, I pass out from the vertigo at work (I teach 1st grade so it's not the best situation) and have a ton of other symptoms that I'm sure you're familiar with. I've applied to several headache centers and cannot find one who thinks it warrants surgery or is affecting my life. It's honestly like by all think your crazy.

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This is just my story of my experience with Chiari. Until I was diagnosed, I'd never heard of it, and I just want more people to be aware of it. I'm not a doctor, so don't quote me on any of this stuff - k? If you are looking for information about Chiari Malformation, a lot of the more informative posts are the older ones.