Monday, September 17, 2007

Gushing Spinal Fluid & OCD

I was talking to my friend Bianka today and explaining that sometimes I can hear - what I imagine to be - my spinal fluid squeezing through my neck. It sounds like the noise water makes when running through a hose with great force. She said EW!

I was writing out an itinerary for my upcoming trip to Denver (2 weeks to go!) and mentioned that I was being VERY OCD about the whole thing.

Bianka says:
You're allowed to be OCD when you hear spinal fluid gushing around.

I found this really funny...Apparently this grosses many people out...it just seems normal to me. :)

Two more weeks and I'll get to experience a whole new normal!

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Stolle said...

Ok, I can hear mine too. I have only tod my mother cause I thought it was kinda weird. I especially hear it when laying in bed. I have a bulging cervical vertebrae. Do you have a condition that you believe is causing the rushing noise?

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Chiari Malformation type 1 can cause the rushing noise. POTS or orthostatic hypertension can also play a part in the rushing noise. I too have the rushing noise.

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Nicole said...

OMG!! I have goose bumps! I know EXACTLY what you are talking about! I am literally almost in tears right now! I began reading at the beginning of your blog and I exhibit almost ALL of the symptoms that you had listed plus a few different ones. I kinda thought that maybe I too have CM but wasn't ready to claim it. But when I read this blog entry, it took my breath away! I have heard this sound in the back of my head/neck for years but couldn't really describe it to anyone. For years my symptoms have been going on at different times/intervals. I have complained to my doctors to no avail. Since my early 20's I have jokingly (but also seriously) said that I need my "head checked" or that I need an MRI cause something doesn't seem "right". Because of your blog, I am now gonna seriously demand an MRI from my doctor. *Side note* not sure if this has any correlation to my hypothetical CM but my 17yr old was diagnosed in '10 w/spina bifida occulta (shes missing 2 of her spinous processes (the "boney protrusions") in her back and my 11 yr old had surgery in '09 for tethered cord syndrome. I AM DEFINITELY SCARED NOW! I will be contacting my doctor ASAP! Thank you soooo much for your blog!
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Ive had central cord syndrome detethering of the spinal cord 3 stroks of the spine was fully paralyzed and devoloped severe scoliosis 72 degree top curvature 89 degree bottom I got ah spinal fusion to straighten it only to 43 top 56 bottom and that was when I was 12 13 in 2003 im 27 now and even tho told I wouldnt move again ive bern living ah normal yes painful because of existing life long injuries but I do have limitations and low muscle development in my right side of my body but still able to function enough to almost look like nothings wrong with me ive work played sports and much more with these limitations and yes it does get in the way of things but you kind of tend to get used to automatically firguring out how to make it work as for the spinal fluid sound ive heard it every since my surgery especially if pressure is on my back head or base of my neck and I would hear almost like ah sound when your stomach gargles or gas passes through your stomach but with ah more high pitch sound and ive havent had any problems from it and if im laying in a proper bed I doesnt happen so in your kids situation having spinal injuries if that noice is heard it more then likely means there laying or sitting or even standing the wrong way to where your circulation is flowing smooth and as soon as I stretch move around or stand up it stops now ive always heard a electrical type sound in my ears since I can remember im currently tryna figure out why is that my hearing is fine and has been always the same so the hearing ringing means your losing your hearing is wrong but again no problems have come from these strange noises

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This is just my story of my experience with Chiari. Until I was diagnosed, I'd never heard of it, and I just want more people to be aware of it. I'm not a doctor, so don't quote me on any of this stuff - k? If you are looking for information about Chiari Malformation, a lot of the more informative posts are the older ones.