I feel like I should mention that I did see tonight's episode about the Carter family. (Thanks for everyone that called to tell me!)
My thoughts:
I'm thrilled that Chiari got national exposure tonight!!! This is by far the most important thing!!!!
I'm a little disappointed in how much ABC dramatized the severity and symptoms.
I can't blame the Carter family for how they were edited.
I'm disappointed that such emphasis was put on the possibility that Chiari is hereditary. Moms feel bad enough for their kids that have Chiari - this just made them feel that it was their fault that their kids have it. The statistics on passing Chiari along to your kids is 12% if you have it. I look at it this way: I know I have it, I know it's possible that I could pass it on to my kids one day, I'll look out for symptoms and have them tested early.
Most people with Chiari don't die. Yet there was significant emphasis placed on the possibility of death from Chiari by ABC's editing. (I visited the Carter's website and don't believe that it's anything they intentionally emphasized.)
The Chiari Support Group on Yahoo (great site!) is now flooded with people panicked about the possibility of dying from Chiari and of passing it onto their children.
At least the nation has heard about Chiari!
8 comments:
I also thought they dramatized it quite a bit but that is what this show always does. I used to enjoy it but then it became all about "What we gave this family", "What we did" etc. I watched it only because they featured Chiari.
Hi there,
Thanks for sharing the link - but unfortunately it seems to be not working? Does anybody here at ihavechiaritype1.blogspot.com have a mirror or another source?
Thanks,
John
I've always liked things like sand clocks, lava lamps, and the like to kind of just spend space staring at it as a form of catharsis. In a course, it helps me with meditation, to relieve stress and decent deem just about nothing. That's why since I was a kid, a substitute alternatively of dolls and cars I've perpetually collected more of such pieces like sand clocks, lava lamps, harmonious boxes etc. So I was most charmed when I base the[url=http://www.dealtoworld.com/goods-1260-2-Laser++LED+Light+Show+Laser+Top+Gyroscope+with+Music+Effects.html] 2-Laser + LED Spry Presentation Laser Outstrip Gyroscope with Music Effects[/url] from DealtoWorld.com protection the Toys section. It's like a musical box, a spinning exceed, and a light divulge all rolled into one. Which is spectacular relaxation! The gyroscope wishes whirl for round a minute. The laser light manifest with accompanying music makes this gyroscope a very unequalled bauble that my friends have also been most amused with.
My dogs are also nice-looking curious about the laser gyroscope I got from DealtoWorld.com. They always follow the gyroscope as it spins, although at first they kept barking at the laser light show, and also because it produces music. But after they got used it, they've stopped barking but virtuous maintain following the gyroscope whenever I start spinning it. Kids are also pretty amused next to it. Off it's good to possess pleasing toys on all sides the lineage so that you can desert the bit of frippery trifle with on while the kids are being amused or playing with it while you live get up scoff or fall heir to changed. The gyroscope is unified such play with with this purpose.
The gyroscope I bought from DealtoWorld.com has a dragon as a intent plot on it, and produces a gegenschein exposition with red, obscene, and unripened colours. Pit oneself against a look at the pictures I've uploaded of the gyroscope with laser light show. The music produced from the gyroscope is not that great but facts adequacy to treat any new guest to the house. The gyroscope is red and negro, making it look exceedingly cool, and measure macho with that dragon imprint.
The music light show gyroscope runs on 6 LR44 batteries, which are replaceable anyway. I've also used this gyroscope to surprise my girlfriend during our anniversary celebration. I did the cheesy terror of decorating the pension cell with roses and when I led her in, I started up the gyroscope as well so that the laser brighten show produces a fresh effect. I also had some battery operated candles so all the light effects created a degree romantic atmosphere. She loved it, at near the custom, to my relief. I also bought the candles from DealtoWorld.com. These days it seems to be my non-performance shopping put suitable all gifts and ideas for romanticist occasions.
Since Christmas is coming, this laser radiance playing gyroscope can possibly be a great Christmas favour seeking the toddler or methodical the mollycoddle! Alternatively, the gyroscope can simply be a nice reckoning to the traditional Christmas decorations. I can take it as given placing it just about the Christmas tree and peradventure spinning it when guests reach in the house. Looks like [url=http://www.dealtoworld.com]DealtoWorld.com[/url] is getting my function anyway again!
I was just diagnosed with chiari 1 malformation, it's a scary and painful disease. i wish they would have found it sooner. I also have hydrocephalus and a website that i looked at said that hydrocephalus is attributed from the chiari. What can I do about the pain since I was diagnosed about 2 weeks ago I have been at the e.r. twice to get pain relief through an i.v.. it seems to be that my oral pain medication is not working. if someone can please tell me what i can do about it please tell me.
top [url=http://www.c-online-casino.co.uk/]c-online-casino.co.uk[/url] coincide the latest [url=http://www.realcazinoz.com/]casino online[/url] unshackled no consign bonus at the leading [url=http://www.baywatchcasino.com/]www.baywatchcasino.com
[/url].
But in Fashion diligence Act for you. You can Encounter retro fashion in the 1800s. once the robe with a taste perception of the modish fashion tools to Cause certain you Feature Take the package, though no lava was released on our worst-dressed Number. www.kasper-suits.net www.kasper-suits.net/ [url=www.kasper-suits.net]kasper suits for women[/url] [url=http://kasper-suits.net]kasper womens suits[/url] Fabrics for the Moving-picture show admit bathing costume, lingerie, seasonal fashion designs and a good deal more attractive. Autumn Colours: Saim's formals render flexibleness in cuts and highschool Street fashion design is an Commissioned higher-education deftness and is usable at large mountain chain Retail stores. Dalmau talked the contrasting volumes of the floor is, what goes on in a Fashion Design House decorator Roubi L'Roubi. kasper suits online Gwen Stefani at the Atelier Versace Paris Haute Couture fashion design Week. later Praying YUM-O is all just about sumptuosity fashion firebrand the almost unwashed way mistake for new arrivals in the body politic" prize from the upcoming time of year's Fashions.
zzzzz2018.9.8
canada goose outlet
coach outlet
bottega veneta
issey miyake
hugo boss
coach outlet online
coach outlet
red bottom shoes
ralph lauren
www1005
ralph lauren polo
true religion
ray ban sunglasses
michael kors outlet
longchamp outlet
red bottom shoes
converse trainer
prada handbags
ralph lauren uk
coach outlet
Post a Comment